Union City supports KaytLyn Bond, diagnosed with pineal gland tumor – Coldwater Daily Reporter
UNION CITY — A car accident in December may have saved KaytLyn Bond’s life. At least it explained the reasons for the incapacitating headaches she has been suffering.
KaytLyn, 17 of Union City, is in her senior year of high school.
As a follow up to the accident, she had a CT.
It showed a pineal gland tumor about 14 mm, said KaytLyn’s mother, Angel Bond.
This wasn’t KaytLyn’s first CT scan.
In 2015 she had a scan but medical personnel did not mentioned a tumor.
However, when they re-examined the previous scan it was present and measured 8 mm, Angel said.
A tumor in the pineal gland is rare, making up less than one percent of all primary brain tumors, according to the American Brain Tumor Association.
The fact that it has grown is a concern and medical providers in this area are less familiar with the condition, Angel said. So, she immediately searched the Internet and found support groups for parents of children with this rare condition.
The experienced parents offered a wealth of information including where to get the best medical attention. One doctor’s name came up over and over, Angel said.
But, he is at Memorial Hermann Texas Medical Center, Houston, Texas To save time, KaytLyn’s parents Mark and Angel Bond, decided to bypass local neurologists and go directly to the center in Houston, Texas.
KaytLyn is one of seven children, five of whom are still at home.
The expense for the first trip, an initial appointment, has been covered by supportive friends, Angel said.
If surgery is required, it will involve additional expenses including time off work, flights and housing for the two weeks in Houston, and costs not covered by insurance.
However, Angel said they are not seeking help until they have more details.
Right now it’s a waiting game. Soon they expect to have the initial appointment scheduled. KaytLyn is understandably “scared.”
“The headaches get really bad. I’m just grateful they’re probably going to go away. Most likely I won’t have to deal with them every day anymore,” Kayt-Lyn said.
While her parents were supportive, not everyone has been understanding about the headaches. When doctors could find no medical reason, KaytLyn’s parents got her to a therapist.
“I just feel like a lot of people are told ‘It’s all in your head.’ That it’s not real,” KaytLyn said But the pain is real as well as the inability to sleep, the dizzy spells and vomiting when no flu bug was present.
“I get really bad anxiety from this,” KaytLyn said, “But I have been told anxiety isn’t a real thing.”
Also real is the constant support from family. KaytLyn has friends who keep track of what’s going on, but she admits to pulling away.
“I just feel like, honestly, I don’t want other people to have to go through this with me — like my friends — it’s not their responsibility,” KaytLyn said.
On the other side of recovery, KaytLyn plans to attend Kellogg Community College for two years, before going on to four year college for a degree in criminal justice.
“After that I want to work at a juvenile facility, to be a corrections officer there,” KaytLyn said.